Awesome Ain’t Easy Fundraiser
Awesome Ain't Easy Fundraiser May 29th - New Orleans 11 am - 5 pm$10 Donation Trep's4327 Bienville Street
Give NOLA Day
DONATE NOW THROUGH TUESDAY, MAY 4TH! GiveNOLA Day is a 24-hour, online giving event organized to ignite the giving community on May 4th. The goal is to inspire others to come together for 24 hours to contribute as many charitable dollars as possible. We hope our...
January 5th, 2020
Ten years ago I was diagnosed with ALS.
Sailing Around Florida in 31 Days
Sailing trip around the coast
Friends, Food and Science
Steph was able to see friends and help ALS research
Dizzy Bat Challenge
The Dizzy Bat Challenge is Simple! • Get a friend to record your quick social media video • Grab your bat (or whatever you have at home), spin around 5 times, and try to take 10 steps in a straight line. • Tag three friends via Instagram Story, Instagram, Twitter,...
Cruising on the Caribbean
Cruising on the Caribbean
Wedding Bells on Maine’s Coast
It was Theanna’s only daughter’s wedding
pALS Testimonial: Dave Clark
Dave is now pursuing woodworking, a long-postponed hobby.
pALS Highlight: Brian Parker (Eyegaze Arts)
Brian meticulously guides a virtual paintbrush by using the movement of his eyes.
Getting to the Wedding in Australia
Wedding in Australia
Bucket List: Macy’s Thanksgiving Day Parade
Bobby’s childhood dream was to see the Macy’s Parade.
Tar Heel Dreams
The Tar Heels lost the game, the experience was priceless
Google’s Project Euphonia
Google’s Project Euphonia
Game 5: Boston Bruins vs. St. Louis Blues
After Andrew’s ALS diagnosis, Erin said they started to really live.
Technology = Quality of Life
Paul using his new technology to communicate
"We all have a timeline.
Most of us don't live like we have a timeline."
- Steve Gleason
No white flags!
