It has been roughly eighteen months since my ALS diagnosis. The disease has been a thief, stealing the strength from my arm and the stability from my legs, but standing on that cliff’s edge, I felt an unexpected, towering peace. There was no room for fear, only the defiant mantra of Steve Gleason: “I am not dead yet!” The jump itself was a revelation of the soul. As I leaned into the “impending doom” of the canyon, the gravity of my diagnosis—the pain, the exhaustion, and the heavy mantle of the disease—simply evaporated. For those moments in the air, I was weightless. I wasn’t a patient or a statistic; I was a spirit gliding through a silent cathedral of burnt orange and ancient, rust-colored stone.
We hit the earth with a perfect 20-foot skid, and I let out a primal scream of joy that echoed off the canyon walls. I have never felt more alive. None of this would have been possible without the incredible generosity of Team Gleason. I am profoundly grateful to the organization and to Steve Gleason himself for turning a distant dream into a reality.