About Steve Gleason
Steve Gleason played for The New Orleans Saints from 2000-2008. As a counter-culture athlete who spent his off-season adventuring in third world countries, he will always be remembered for his blocked punt on the night the Louisiana Superdome reopened for the first time after Hurricane Katrina.
In January, 2011 Steve was diagnosed with ALS, considered a terminal neuromuscular disease. Beyond his faith that there is a solution to heal, it is his mission to show that patients can not only live but thrive after this diagnosis. In doing so, he hoped to inspire others to do the same. With that in mind, Steve and his wife, Michel, formed “Team Gleason” to help him accomplish those goals and more.
Steve’s story and mission have been told countless times throughout the media and in a soon to be released documentary. The NFL Network, ESPN, HBO, ABC, CBS, CNN and many local out-lets have all been inspired to share the Team Gleason story in many ways. He was featured in 2 Peter King interviews during Super Bowl pre-game shows, NFL’s A Football Life, Good Morning America, HBO’s Real Sports and more.
The NFL Network, ESPN, HBO, ABC, CBS, CNN and many local out-lets have all been inspired to share the Team Gleason story in many ways. He was featured in 2 Peter King interviews during Super Bowl pre-game shows, NFL’s A Football Life, Good Morning America, HBO’s Real Sports and more. He was named one of 2 Sports Illustrated’s Inspirations of the Year in 2014 and been a keynote speaker for Microsoft and at 2 United Nations sponsored Social Innovation Summits. Steve was the featured personality on the highly praised and reviewed Microsoft commercial during the 2014 Super Bowl with over 3 million views since airing.
As an advocate on the national stage, Team Gleason has brought ALS to the forefront. In 2015, both the US House of Representatives and the Senate unanimously passed “The Steve Gleason Act” to ensure the availability of life sustaining communication devices. The Act was signed into law on July 31, 2015, but had a 3 year sunset. In 2018, the Steve Gleason Enduring Voices Act was submitted to replace the original law and passed in February.
Steve has led the charge in innovative assistive technology.
Recently, Steve’s film, ‘Gleason’ was released to outstanding reviews. The film was heralded at the Sundance Film Festival and premiered across the country to equally impressive reviews. Variety called the production, “an emotional powerhouse” and reviews continue to echo that sentiment as the film becomes widely available. The film was shown in theaters across the country, streamed through major services and was in the top 15 films considered for 2016’s Academy Awards.
With one of Steve and Team Gleason’s focus on life sustaining and enhancing technology, Steve has lead the charge to help innovate for and promote innovative assistive technology. In 2015, Steve challenged Microsoft to create a method for people who are completely paralyzed to navigate their power wheelchairs with their eyes. Not only did the tech giant complete the request, Steve, Team Gleason, and others are working collaboratively to make the technology widely available to all who need these liberating devices. As a result of Steve’s inspiration, Microsoft has also made eye tracking technology part of all Windows 10 products across the globe. Access to this technology with the most used operating system in the world speaks volumes to the impact Steve’s challenge has had.
In addition to Steve’s focus on technology, equipment and adventures, Steve and Team Gleason hosted a Summit in New Orleans in 2014. Leading researchers met with patients, caregivers and all ALS stakeholders for the first time in a single meeting. The call to action was to “think differently” and create a plan to ultimately end ALS in our lifetime. The result was what is now recognized as the single largest coordinated and collaborative ALS research project in the world, Answer ALS. Nearly 2 dozen institutions, 1000 patients and 20 trillion data points are key to the project that will define the unknown pathways that will lead to treatments or finally a cure.
But, the most signiﬁcant accomplishment for Steve and Michel since Steve’s diagnosis was their decision to have a child. In November 2011, Rivers Gleason was born and is the center of their lives. When Steve was diagnosed, he famously said there will be “No White Flags”. This has become the Team Gleason mantra, but it is most important when applied to Steve as a father. No goal is more important to Steve and Michel than ﬁnding a solution for ALS, so they can share many, many years together and as parents to Rivers.
Steve Gleason with wife, Michel and son, Rivers
Photo credit: Microsoft
Team Gleason Story
Team Gleason is committed to providing for and finding solutions for those living with ALS and other related neuromuscular diseases. Our focus is on those with ALS and also those who care for them. Team Gleason’s small staff and volunteers work tirelessly every day to empower those living with ALS to live with continued purpose and as productively and independently as possible.
Team Gleason is a recognized charitable 501c3 non-profit corporation with the mission to:
- Help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services.
- To create a global conversation about ALS to ultimately find continued solutions and an end to the disease.
- To raise public awareness toward ALS by providing and documenting extraordinary life adventures for individuals with muscular diseases or injuries.
Since Team Gleason’s inception, the group has had a significant impact on the lives of countless people living with ALS. While the organization has spent millions of dollars providing equipment, technology, services, care, life-changing adventures and more, the impact of the group goes well beyond its direct mission. In 2015, the Steve Gleason Act was signed into law, ensuring access to all people who need assistive communication devices. The following year, the film, ‘Gleason’ was released to outstanding reviews at the Sundance Film Festival and was in the top 15 films considered for an Academy Award.
In one of Team Gleason’s first meetings, Steve declared,
“There Will Be No White Flags.”
He meant it and so do we.
Steve and Team Gleason continue to push the boundaries of what is possible in living with ALS. Whether it be partnering with the world’s largest tech companies, challenging legislation, innovating for new technology or creating life-changing experiences, the group strives to find solutions where others see only problems.